The loved ones of a severely epileptic woman who employs medicinal cannabis to cut down her day-to-day seizures from 300 to 10, fear the coronavirus crisis will abruptly prevent their ability to source the treatment.
Ten yr-previous Teagan Appleby from Aylesham close to Dover and Canterbury ran out of Celixir just around a 7 days back but fortunately a new cargo arrived that exact day that will previous her a different two weeks.
But now her mum Emma concerns they won’t be so blessed up coming time.
Mrs Appleby told Kentonline that “things have been difficult” because Covid-19.
She extra: “We pretty much ran out as finding an import of Teagan’s medication was starting to be unattainable.
“Thankfully the working day we ran out we had a contact to say the medicine experienced the arrived at the airport so we collected on that day.
“Now we are fearful about the upcoming batch arriving in time.”
Teagan suffers from a unusual genetic condition referred to as Idic15.
Epilepsy can appear as section of this situation and Teagan has a really extreme circumstance known as Lennox Gastaut Syndrom. Beforehand it led to up to as numerous as 300 seizures a day of varying severity.
She reportedly tried multiple epilepsy medications, and even experienced a vagus nerve stimulation unit VNS equipped two a long time in the past with no achievements.
Considering that currently being approved medicinal cannabis following the regulation improved in 2018 her seizures diminished to all over 10 on a negative day – two on a great day.
Until eventually this 12 months, where the relatives did not have the cash for an import licence, Mr and Mrs Appleby had to journey to Holland to acquire Teagan’s medication, a preparing named Bedrolite, at a cost of £2,500 per thirty day period.
Until eventually their past journey on December 27, they were committing an offence bringing it back into the British isles with out the correct documentation.
They have been in no way billed for the offence.
Right after creating up a tolerance, Teagan switched to a more robust form of medicinal hashish termed Celixir which is much less expensive and is imported lawfully from Israel.
But despite the lowered cost of the medication, with import expenses it nonetheless totals a back-breaking £1,500 a time.
Now the place Covid-19 has put an immense strain on the economy and charities throughout the region, donations to Teagan have dried up.
Mrs Appleby explained: “It really is unattainable to increase money in this pandemic so its placing even much more stress on us which is really really hard.
“We haven’t acquired the ability to keep any occasions – obviously, due to coronavirus we’re not allowed to leave the household – so fundraisisng has rather considerably come to a halt at the moment.
“Folks, understandably, have not bought enough dollars to be encouraging.
“I you should not like asking for help any time, never intellect when we’re going by way of a global pandemic.
“This is fairly a major worry that if we are unable to fundraise we can’t afford to pay for the medicine.”
“We experienced a huge party just before this kicked off. We experienced some dollars occur in from that but when that operates out we would not be able to invest in her prescription.”
You can assistance Teagan by donating to her crowdfunding website page. To do so, simply click below.
Locate out more about her plight by browsing Enable For Teagan on Fb.